While writing the final chapters of A Terminal Illness Primer for Caregivers, I realized that I’ve been working on these posts for nearly a year now. Today the final chapters: When the End Is Close, Just Be and After Words, are available here. It feels good to bring this project to a close.
My work isn’t quite finished, however. Within the next month or so, I will be offering A Terminal Illness Primer for Caregivers in pdf and Kindle formats. The published version includes additional chapters and information. 100% of the proceeds from the sale of the primer will be donated to the Charles A. Oliverio Fund at Huntsman Cancer Foundation. This fund was created from a bequest in my brother’s will, stipulating that a large portion of his estate be donated for the cause of research in the treatment of glioblastoma multiforme, a rare and extremely malignant form of brain cancer. Research in this area is woefully underfunded because of the relative rarity of the disease. My family, friends, and I are working to nourish this fund so that the doctors and researchers who treated my brother can find a cure for this killer – there is a 2% survival rate beyond three years. Totally unacceptable.
How you can help:
- If you have any suggestions on what you’d like to see in the published version of the Primer, please let me know! What did I leave out? Are there areas that need additional information? Is it too personal? Not personal enough? I’ve read the darn thing so many times, my head is spinning!
- If you’ve read A Terminal Illness for Caregivers here on my blog and found it helpful, I hope that you will consider writing a positive review on Amazon once the primer is published and available for purchase. I will be contacting some of you directly to ask for your help. These positive reviews will help other readers find the book.